#Dublin - Laura for the Central Remedial Clinic

My name is Laura Murphy and I have two children with an extremely rare genetic condition. Our son Joshua was born 6 weeks prematurely as he was so tiny during my pregnancy. We believed that he would grow normally after his birth but unfortunately that was not to be. His condition was so rare that it was yet to be diagnosed. Two years later his little sister Olivia was born with the same condition. It took many years and a lot of research here and abroad before the children’s condition was discovered.  

The children have an extremely rare type of primordial dwarfism which means they are among the smallest people in the world and their needs are extremely complex. Having a child with a disability can be very isolating and worrying. I needed to leave my business in order to care for Joshua and Olivia. They spend a lot of time in hospital with appointments and due to illness. It has been an extremely difficult few years but unbelievably rewarding. They are two very special children who bring absolute joy to everyone who meets them. 

The Central Remedial Clinic has been a lifeline to our family. It has provided a sense of community where we can meet with other families in similar circumstances. It is a wonderful feeling to be within an environment that allowed us a sense of normality. The therapies provided by the CRC have been essential in helping our children to develop their physical and communication abilities.  

Joshua and Olivia have complex medical needs and we are very fortunate to have the care of the paediatric and nursing team within the Central Remedial Clinic. Having a specialised team of people who are dedicated to bringing out your child’s potential in all aspects of their development is very comforting. We all look forward to meeting the remarkable staff each week. Through the CRC we have a wonderful sense of community and belonging. Joshua and Olivia also attend school in the CRC.  

I am participating in the Vhi Women’s Mini Marathon in order to raise funds and to show my appreciation for all the Central Remedial Clinic provides for so many families and individuals with disabilities. Please check out the website www.crc.ie to donate and support this amazing organisation. Through the high standard of care we as a family receive in the Central Remedial Clinic the future feels very positive for our two incredible children.